On January 4th, we went back to Children's for Madeline's first follow up appt. I was nervous about being back there. I kept thinking that they would want to re admit Madeline for some reason and we would be stuck there again. Of course that didn't happen, but it was just stressful being there again. We met with Maddy's surgeon, Dr. Avansino and her dietician, Jenny Stevens. It was so great to see them again. They took wonderful care of Maddy and us during our stay so it was nice to see familiar faces. They thought she looked great and were impressed with her weight gain. They were not happy with how her feeding were going though. Maddy really does not like drinking from the bottle, and constantly takes a large mouthful of breast milk, and then spits it out. However, if she is asleep, she drinks like a champ. They were also concerned about how much she as spitting up and vomiting after feeds (as many as 4-5 times a day). This is especially concerning because she throws up after being given her Iron, which she needs badly because she is so deficient. Dr. Avansino briefly mentioned the possibly of Maddy needing a G tube (a feeding tube surgically implanted in her stomach). But we really didn't think it would come to that.
After our surgical appt, we went to see Maddy's Occupational Therapist who watched Maddy drink from the bottle and she gave us some tips to try to encourage her to drink more. They decided to eliminate her 3am feed to increase her hunger. So now we have a long stretch from midnight to 6am that she doesn't need to be feed. Too bad I still have to get up and pump :-(
 |
| At our appt in Seattle |
No comments:
Post a Comment