Madeline is on a 3 hour feeding schedule. Every 3 hours, we try to give her a bottle of breastmilk. What ever she doesn't drink, goes into her pump (a total of 106ml). She is given 106ml's over 45 minutes and then her tummy gets an hour and half break before her next feeding. This is to give her a chance to get hungry. We aren't even sure if she ever feels hungry because her whole life she has been on IV nutrition or being constantly fed through her feeding tube. She doesn't show much interest in drinking from a bottle and sometimes will only drink a ml or 2. She just holds it in her mouth and then spits it out. It's very frustrating. Our goal is to get to 30 mins feeds of 106ml's, and have her drink that amount from a bottle, but at this point, it seems like a long way off.
Her schedule makes for long nights because Jeff and I are up every 3 hours to feed her, set up her pump and then get her settled back in to bed. On top of that, I am still pumping every 3 hours, so I have to do that as well. Jeff will soon be going back to nights, which will make things even harder.
Madeline also has severe acid reflux and is on her fourth medication to help control it. But it isn't working. She spits up and throws up about 4 times a day. She has gotten to the point where she doesn't even cry anymore, it just comes up. Which is just sad because it means she is just used to the pain now. Having the NG tube in doesn't help either because it makes it so her throat can't close all the way, making it easier for the spit up to come up. She is also taking iron twice a day, which is very hard on her stomach and also causes her to throw up. For some reason, when babies spend a lot of time in the hospital their iron levels drop, so she is anemic. We are hoping she can get off the iron very soon.
Madeline sleeps on a foam wedge in our bed (thank God we bought a king sized bed a few months ago!). It helps with her reflux, and we have her close by in case she spits up in the middle of the night. It will be a long time before she will move in to her own room.
Madeline does pretty well not grabbing her NG tube, but we have had to put it back in 4 times. It is not fun at all, and I can't even imagine how uncomfortable it is for her. We can't wait for the day when it finally come out.
Hailey loves having a little sister and loves to help us get things for her or watch us change her diaper. She has done so well adjusting to all of the changes, we just can't believe it. I see Hailey and Madeline being the best of friends.
Look how far she has come...
Friday, January 13, 2012
Madeline's 2 month check up
3 days after we got home from the hospital, Madeline had her 2 month check up with our local pediatrician. She weighed 10lbs 8oz (45%), she is 22 inches tall (25%) and her head is 37.5cm around (24%). Dr. Gass thought she looked great considering all she has been through. She also got 3 shots, which she hated and screamed through. Poor girl.
Misc. holiday pictures
Random pictures
December 19, 2011
We will always remember this date. It is the date that we finally brought Madeline home. After 69 long days, and 2 surgeries we finally get her all to ourselves! We were so unbelievably excited, but we kept thinking that something would happen and we wouldn't get to leave...thankfully that didn't happen! Prior to discharge, we had to learn how to put in Madeline's NG tube (which was not fun), and then learn how to operate the pump to feed her. After that was all done and the car was loaded up, it was surreal that we actually got to leave. With Madeline. We said goodbye to all of our favorite nurses (Val, Ashley, Tim, Maddy, Heather), and headed out of the hospital. Madeline had never been outside. Never seen the clouds or the sky, or even breathed fresh air. She just looked up at the sky once we got outside and seemed so much more relaxed. She fell asleep in the car immediately and slept all the way home. Hailey loved having her sister sitting next to her in the car and was squealing with delight. Jeff and I both felt there was a huge weight lifted off of us as soon as we left the hospital. Finally we could be a family of 4 in our own house.
We drove straight home and quickly got settled in. There were mountains of laundry to do and put away, as well as tons of other things to put away. Imagine living out of a suitcase for 2 1/2 months and how much stuff you would acquire in those months, especially how many things an adorable red head would acquire from making friends with everyone she met at the hospital. :-) But we got it all done and Madeline settled in nicely. The house still felt a bit empty because the dogs were still gone (Moose with my parents, and Caesar with Jeff's dad), but it was nice to get settled in before getting our 2 furry kids back. It was so nice to be in our own space and have privacy. No doctors or nurses coming and going as they please at all hours, no blood draws happening at 6am every morning, no cleaning people interrupting visits, just peace and quiet. It was awesome.
We were so happy and thankful that we got to come home before Christmas. Right after Madeline was born, I made a promise to Hailey that we would be home for Christmas because I never expected to be in the hospital for as long as we were. I'm so glad that I was able to keep my promise to her. I knew that this Christmas would be extra special and I so wanted to celebrate in the comfort of our own home. This Christmas will forever be remembered.
The night we got home, I took Hailey to Haggen's to get groceries because our house was bare. Hailey was so excited to get a Christmas tree, but it was raining so we told her we would do it the next day. While walking past the trees at the entrance of the store, Hailey asked if we could get one, and I said no that we had to wait. Little did we know a Christmas miracle was about to happen....while shopping, an employee walked by us and said "Does anybody need a Christmas tree?" Stunned, I blurted out that we did. She told us to follow her outside. Outside she explained that all their trees were now $10, but they weren't advertising it yet and there was a beautiful tree that needed a nice home. I explained to her how amazing it was that she happened to walk past us out of everyone in the store, and told her that we had just got home from the hospital and that Hailey was dying for a tree. She showed us this huge tree, over 6 feet tall and perfect. I told her we would take it. She cut the bottom off of it, wrapped it up and then bought it for us. She insisted and just made me promise to bring Madeline in so she could meet her. We both had tears in our eyes. It was one of the nicest things someone has ever done. When I got home and told Jeff about it, he was amazed too. It made our Christmas even better, and it was one less thing we had to worry about. I have since taken Madeline in to meet her, and look forward to showing her off as she grows up.
We drove straight home and quickly got settled in. There were mountains of laundry to do and put away, as well as tons of other things to put away. Imagine living out of a suitcase for 2 1/2 months and how much stuff you would acquire in those months, especially how many things an adorable red head would acquire from making friends with everyone she met at the hospital. :-) But we got it all done and Madeline settled in nicely. The house still felt a bit empty because the dogs were still gone (Moose with my parents, and Caesar with Jeff's dad), but it was nice to get settled in before getting our 2 furry kids back. It was so nice to be in our own space and have privacy. No doctors or nurses coming and going as they please at all hours, no blood draws happening at 6am every morning, no cleaning people interrupting visits, just peace and quiet. It was awesome.
We were so happy and thankful that we got to come home before Christmas. Right after Madeline was born, I made a promise to Hailey that we would be home for Christmas because I never expected to be in the hospital for as long as we were. I'm so glad that I was able to keep my promise to her. I knew that this Christmas would be extra special and I so wanted to celebrate in the comfort of our own home. This Christmas will forever be remembered.
The night we got home, I took Hailey to Haggen's to get groceries because our house was bare. Hailey was so excited to get a Christmas tree, but it was raining so we told her we would do it the next day. While walking past the trees at the entrance of the store, Hailey asked if we could get one, and I said no that we had to wait. Little did we know a Christmas miracle was about to happen....while shopping, an employee walked by us and said "Does anybody need a Christmas tree?" Stunned, I blurted out that we did. She told us to follow her outside. Outside she explained that all their trees were now $10, but they weren't advertising it yet and there was a beautiful tree that needed a nice home. I explained to her how amazing it was that she happened to walk past us out of everyone in the store, and told her that we had just got home from the hospital and that Hailey was dying for a tree. She showed us this huge tree, over 6 feet tall and perfect. I told her we would take it. She cut the bottom off of it, wrapped it up and then bought it for us. She insisted and just made me promise to bring Madeline in so she could meet her. We both had tears in our eyes. It was one of the nicest things someone has ever done. When I got home and told Jeff about it, he was amazed too. It made our Christmas even better, and it was one less thing we had to worry about. I have since taken Madeline in to meet her, and look forward to showing her off as she grows up.
Catch up
I had hoped to be able to keep up with this blog while we were in the hospital, but the truth is that it was too hard to relive everyday twice. Once by living it, and then again by writing about it. Looking back, I wish I could have kept up with it, but emotionally, it would have been much too difficult. There were so many highs and lows (more lows than highs), that it was absolutely exhausting.
Our time at Children's Hospital was so difficult, but so amazing at the same time. We met so many good people, and Hailey learned and grew up so much in the 2 1/2 months we were there. Jeff and I made it through the most difficult time we have ever experienced and came out stronger because of it.
Madeline is such a strong little girl. She amazes us everyday. We love her so much and it's hard to believe that she has only been in our lives for 3 months now. It feels like she has always been here. Our hearts have grown in size with love and appreciation for both of our girls.
Our time at Children's Hospital was so difficult, but so amazing at the same time. We met so many good people, and Hailey learned and grew up so much in the 2 1/2 months we were there. Jeff and I made it through the most difficult time we have ever experienced and came out stronger because of it.
Madeline is such a strong little girl. She amazes us everyday. We love her so much and it's hard to believe that she has only been in our lives for 3 months now. It feels like she has always been here. Our hearts have grown in size with love and appreciation for both of our girls.
Subscribe to:
Posts (Atom)



















